Protecting your privacy is very important to us. We’re telling you about our privacy policy so you know what information we collect, why we collect it, what we do with it, and your rights with respect to your information. This privacy notice is for and other subdomains such as (“Sites”) and the personalized patient follow-ups we perform for clinical trials ( “Services”). “Personal information” is information, or a combination of pieces of information, that could reasonably allow you to be identified, including information defined as “personal data” and governed by the EU General Data Protection Regulation 2016/679, “protected health information” as defined by the Health Insurance Portability and Accountability Act of 1996, and “personally identifiable information” that can be used to identify you directly or when combined with other information. Personal Information may include, but is not limited to, information such as your name, email address, date of birth, home address, health status, or the IP address of your computer.

Types of information we collect

Personal information, including your health status, will be collected when data is collected by Hawthorne Effect as part of your participation in a clinical trial.  We may collect the following types of information that you provide voluntarily with consent:

At Hawthorne Effect, we’re creating a network of healthcare professionals (called Heroes) who are dedicated to high-quality, personalized patient follow-up for clinical trials. When you apply to become a HERO, we collect information including your first and last name, your email address, your resume, your responses to several questions, and credential information. When you request information via our website or by sending us an email, we collect information including your name, email address or phone number. Certain information about your visit can be collected when you browse websites. When you browse our Sites, we may collect the following types of information about your visit, including:

How we use your Information

How we share your Information

We will not disclose your Personal Information to any third party except as follows:

Your Rights and Information Updates

You have the right to review, amend, or correct your Personal Information held in our databases. Subject to certain exceptions, you have the following rights:

To exercise these rights please contact us by sending an email to with a clear description of your request. We will respond to your request as soon as reasonably practicable and always under the timeframes set forth by applicable laws. You may have additional statutory rights under applicable regional law. If you are in the European Economic Area (EEA) you also have the right to lodge a complaint with the local data protection authority if you believe that we have not complied with applicable data protection laws.

How we use cookies and other technologies

Cookies – When you visit a website, its server may generate a piece of text known as a “cookie” to place on your device. The cookie, which is unique to your browser, allows the server to “remember” specific information about your visit while you are connected and improve your website experience. There are two types of cookies, single session (temporary), and multi-session (persistent). Single session cookies last only as long as your Web browser is open. Once you close your browser, the session cookie disappears. Persistent cookies are stored on your device for longer periods. Both types of cookies create an ID that is unique to your device.

Hawthorne Effect also uses the following technologies on, how often they return, and how they navigate through the site. Hawthorne Effect is committed to protecting the user and Personal Information entrusted to us. We have implemented technical and organizational security measures to protect the security and integrity of your Personal Information in accordance with this Privacy Policy and applicable law. Such measures include restricting access to Personal Data on a “need-to-know” basis and an Information Security Program aligned with ISO 27001 and 27002. We secure information using industry standard administrative, physical, and technical safeguards including encryption of information that is stored and transmitted. While we endeavor to always protect our systems, sites, operations and information against unauthorized access, use, modification and disclosure, it is important for you to know that, despite using these current industry-recommended practices, we cannot guarantee against breaches in security.

Retention of Your Data  

Hawthorne Effect will keep data collected long enough to achieve the specified objective for which they were collected. Once the specified objective is achieved, the data will be erased or destroyed. We store your Personal Information for as long as required by the clinical trial or as necessary to comply with our contractual and legal obligations, resolve disputes, or enforce our agreements to the extent permitted by law. If you would like your Personal Information permanently removed from our database, please contact us at  Subject to applicable law, clinical trial requirements, our instructions from​        the trial sponsor, and necessary record retention requirements, your identifying Personal Information shall be deleted from our records.

The Sites may contain links to other websites. We link to other websites solely for your convenience and education. When you follow a link to an external site, you are leaving and are subject to the external site’s privacy and security policies. Hawthorne Effect is not responsible for the contents of external web pages, and a link to a page does not constitute an endorsement. Hawthorne Effect leverages a variety of technologies and social media services to communicate and interact with the public. These third-party websites and applications include clinical trial recruiting and screening, social networking and media sites and, open-source software communities, and more. Your activity on the third-party websites that links to (such as Facebook or Twitter) is governed by the security and privacy policies of those sites. You should review the privacy policies of all websites before using them so that you understand how your information may be used. You should also adjust privacy settings on your account on any third-party website to match your preferences. These tools collect basic site usage information such as: how many visits receives, the pages visited by users, time spent on the site, the number of return visits to the site, the approximate location of the device used to access the site, types of devices used, etc. This information is then used to maintain the website including: monitoring site stability, measuring site traffic, optimizing site content, and improving the user experience.

Cross-Border Data Transfers

Hawthorne Effect and its servers are located in the United States and are subject to the applicable state and federal laws of the United States. When you access or use our Sites or receive our Services, you consent to the use and disclosure of information in accordance with this Privacy Policy and are subject to such laws. We transfer your personal information subject to appropriate safeguards as permitted under the applicable data protection laws. We take all necessary measures to ensure that transfers of your Personal Information out of the EEA are adequately protected as required by applicable data protection law.  For such transfers, we rely on legal transfer mechanisms such as Explicit Consent, Binding Corporate Rules, or Standard Contractual Clauses approved by the European Commission.


Hawthorne Effect may modify or amend this Privacy Policy from time to time. If we make any material changes in the way in which Personal Information is collected, used or transferred, this Privacy Policy will be revised to reflect such changes. We will post the updated Privacy Policy and ask for your consent if legally required. The effective date appears at the top of this Privacy Policy.